SIL is about Supported Independent Living, it's the funding people who live in group homes need to have in their NDIS Plan. Not the best choice of names because, let’s just get really clear, meeting individual needs, exercising choice and control in a group home are at best limited and most likely to be completely wrapped up in the needs and choices of the other people in the home (and the needs of service who provides the support). Until recently the group home provider submitted a Roster of Care (RoC) and SIL funding documents to the NDIS and between themselves they worked out how much funding a person got. Although people with disability, their families and us as Coordinators of Support tried to insert ourselves into that conversation, mostly it felt like a secret deal between the NDIS and the provider. We were lucky we got to see the RoC after it was signed off. So, now things are changing, and they are changing fast. Now we have new guidelines, and it seems, under the guise of choice and control, the NDIA is giving ‘control’ to participants while exiting from the previous arrangements they had with the providers. Going forward, with SIL funding, like funding for most other support services, the NDIA will determine what kind and levels of support and funding a person needs based on the evidence they have (might be a previous RoC or might be a new OT assessment, etc).
Now the NDIA determines what is needed and then provides the funding to the participant, who in turn (and together with their Coordinator of Support) negotiates the agreements with the SIL provider … mmh?? Unlike most negotiations, in most situations and locations, it seems to us that there really isn’t much to negotiate, as there isn’t much choice and control a person has who is dependent on the provider for accommodation and day to day support. And it also important l to remember, that the people who live together in the house rarely, if ever, get to choose a new housemate when there is a vacancy (and get to talk about whether the potential new housemate’s funding is compatible with and contributes positively to the funding) and there really isn't an open market of vacancies in group homes.
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After months and months of pressure from the community, the Independent Assessments are on hold. One of the players that helped put the pressure on was the Independent Advisory Council (IAC). That Council advises the NDIA Board on issues affecting participants, carers and families. They wrote a report and recommended that: “All elements of the independent assessment design, including the toolkit and practice guidance, should be designed in partnership with the disability community to deliver flexible approaches to the greatest extent practicable for the most complex participants that do not have supports, have experienced trauma or have complex behavioural support needs.” The IAC also spoke to what many of us have been feeling, which is that there has been a massive erosion of trust between the disability community and the NDIA, government and the disability services system more broadly. A speech made by the Minister since the announcement to put things on hold gives us all an idea of what’s on her agenda:
So be prepared and expect to hear lots more about
More information and resources about Individual assessments
From the NDIA Since the pause button has been pressed the NDIA website shifted basically all of their information about Independent Assessments to a section of their website they call ‘History of the NDIS’ (funny how quickly something becomes history). You find some historical information here https://www.ndis.gov.au/about-us/history-ndis/independent-assessments-proposal
From Every Australian Counts
This grassroots organisation (together with most disabled people led organisations) have led the campaign against independent assessment. Their “Hans of our NDIS” Campaign is not just about independent assessment, but also talks about many of the other issues floating about. Check out their website |